PXE NAPE logo NAPE, Inc.
111 Oak Ridge Drive
Hawley, PA 18428
nape@napeusa.com
Tel: 570-226-6020

Home Current Issue Must Reading Selected Articles FAQ Archive Issues Member Info Conference

Coping Until the Cure:
A PXE Patient-Centered Conference

2010 NAPE Conference

Philadelphia, Pennsylvania
October 22 and 23, 2010

Download Registration Form (pdf 48 KB)


Schedule

Click to Listen (833.6 KB AUDIO)

Friday evening, October 22, 2010
4:00-4:15 pm Introductions/Conference Information
4:15-5:45 pm NAPE's Story - Kenneth Neldner with Lenore Seeuwen
 
6:00-9:00 pm Dinner, discussion, making new PXE friends
7:00 pm Gene Patents Ruled Illegal - Sandra Park, American Civil Liberties Union
 
Saturday, October 23, 2010
(Breakfast on your own)
8:30-8:45 am Introductions/Conference Information
8:45-10:00 am Nanotechnology, AMD and PXE - Kattesh Katti, PhD, and Ravi Shukla, PhD
 
10:00-10:20 am Break
10:20-12:00 noon What Patients Need to Know And Do About PXE - Berthold Struk, MD, PhD
 
12:00-12:15 pm Break
12:15-1:45 pm Lunch
1:45-3:00 pm   Supporting Research with Human Biomaterials - Lee Ducat with NDRI Staff
 
3:00-3:15 pm Break
3:15-4:30 pm PXE and Nutrition Research - Matthew Lange
 
4:30-5:00 pm Board Update
5:00 pm Conference Adjourns


Home Current Issue Must Reading Selected Articles FAQ Archive Issues Member Info Conference